The Sussex Beacon is to end inpatient care for people with HIV at its 10-bed unit in Brighton and focus on nursing patients in their homes instead.
The decision follows a review of HIV services by commissioners – known as the NHS Sussex Integrated Care Board. NHS Sussex provides about a third of the charity’s annual £2 million income.
In recent years, the charity has spent more money than it has managed to raise, with the coronavirus pandemic restrictions leaving a significant dent in income.
The annual half marathon typically raised about half of the Sussex Beacon’s annual income – and the inpatient unit cost about £1 million a year to run.
The charity said that the changes would take place in April, adding: “Care for people who live with HIV has changed immeasurably in recent decades.
“Earlier diagnosis and the introduction of effective anti-retroviral treatments help people live healthy lives, with HIV now considered a long-term condition.
“In response, the Sussex Beacon will be working to move elements of its nursing provision into the community, alongside services already provided.
“This new model will complement the existing community services team and the high-quality support that they provide across Sussex to people living with HIV, their families and friends.
“This will mean that the Sussex Beacon’s inpatient unit will cease to operate in its current form, in line with services in other areas of high prevalence which have already moved away from inpatient support to community HIV teams in people’s own homes.
“All other Sussex Beacon services remain unaffected by this change.”
The Sussex Beacon added: “NHS Sussex recognises the value of the clinical offer that the Sussex Beacon’s inpatient unit has provided since the Beacon was founded in the early 1990s.
“And (it) is committed to working with the Sussex Beacon to consider what this new model of care could look like in collaboration with other system partners.
“This will coincide with the publication of the government’s new HIV Action Plan, due in the summer.”
Sussex Beacon chief executive Rachel Brett said “The Sussex Beacon was established by the community 32 years ago in response to the AIDS crisis and we have led the way in providing HIV care and support.
“As a charity, we are aware that people will be saddened by this news as they reflect on the people we have cared for and continue to care for.
“However, after a review of HIV services, NHS Sussex concluded that a community-based clinical model is in keeping with current best practice.
“We are embracing this new chapter and model of clinical delivery to consolidate our future delivery.
“We are very proud of our charity’s heritage and the role our amazing staff have played in caring for those living with HIV.
“The Sussex Beacon continues to be indebted to our wonderfully supportive community who have stood shoulder to shoulder with us since our foundation.”
NHS Sussex chief medical officer James Ramsay said: “We are looking forward to working with the Sussex Beacon and other system partners to consider how people living with HIV can receive the best possible care.
“Improved treatments and outcomes mean a community-based approach is now the most effective way to support those living with the condition – and we will be in line with similar areas across the country to follow best practice and provide care and services in this way.”
Dr Ramsay added: “The Sussex Beacon has a vital and valued role in the city and, together with their experienced team, we will work with wider health and care services to ensure that people across our communities can continue to reach the services they need and their family and friends.”
Working in collaboration with other similar objective groups like Higgins Trust, CHIVSS and The Lawson Unit with a strategic approach makes sense as a model to explore, in my opinion.
I don’t agree i know loads of people that use the Beacon, its services can’t be found anywhere else. Lots of HIV patients need intensive targeted TLC care that can’t be provided by a home visit that will be time limited unlike the care you get at the Beacon. Patients will end up in A&E and treated in corridors which is the norm. Or bed block. Home care won’t work for many patients with HIV. The sad thing is our community set up the Beacon back in i thing 1987 but had no say for its future. Yes the NHS has removed funding but the way forward should have involved the community that supported it all these years. Losing the Ten bed unit in a area that has a high number of HIV patients WILL COST LIVES.
What will happen to the property I wonder?
It’s a good question. Downsizing is certainly one option. The quotes in the article suggest retasking the ward into more outpatient care facilities. There could be several ways, from a health and wellbeing hub to enhancing diagnostic and treatment facilities, training and education space, and even a community cafe and social space.
I know the Beacon very well, its a sad day removing services that can’t be provided for patients anywhere else. Patients will end up in A&E treated in corridors ( I KNOW) or bed blocking. The Beacon now that it won’t be a hospital will be getting rid of many long serving staff so surely it also needs to downsize management. I think the ten bed unit should be sub let to a hospice charity as its ready to go and the rest of the building used for the beacon services.
Our community in Brighton set the Beacon up in 1987 if i remember the date correctly, but had no say in recent decisions, we were not even consulted. I think the ten bed unit should be sub let to a hospice charity as its ready to go, then the rest of the large building used for Beacon services.
I’m hoping it becomes sheltered accomodation and continue serve the same clientele. Build self contained units on the land to rent or buy that would help fund the centre
What will happen to those people who need an inpatient service?
Exactly, lots of HIV patients need intensive targeted care that can’t be provided at home to get them back to health. A home visit simply won’t work. So lots of these patients will end up in A&E and treated in corridors or blocking beds in the hospital. A statement on companies house by the Beacon says the service it provides in its ten bed unit is not provided anywhere else. But it all come down to money as the NHS has removed funding. The most seriously ill HIV patients will now be left in Limbo it will cost many lives. The Beacon will be doing what social services are not but it won’t help the people that relied on the Beacon.
Community Space sounds good-that part of the City hardly has a local shop ( well they do but it’s a walk-Milner Rd) otherwise it’s all the way to Lewes Rd area just for milk or to use Paypoint
But surely not more flats inside the building.
No doubt someone has a plan with it already for sure.
Its a nightmare to get to if you dont drive or have a car
At least referrals appointments there are reimbursable. Always try to remind people of that one, can make a fair bit of savings for people.